On Rare Disease Day, Dame Anne Begg, MP for Aberdeen South, welcomed NHS Grampian’s campaign to raise awareness amongst health professionals and the public of the impact a rare or orphan disease can have on an individual and their families.
Dame Anne said:
“As someone with a rare genetic condition I know how difficult it can be to get a proper diagnosis and medical treatment. It can also be hard for patients to get information about their disease or to meet others who have it.
“I, therefore, welcome NHS Grampian’s campaign to mark this important day and raise awareness.”
Friday 28th February is the seventh international Rare Disease Day and this week Dame Anne also attended an event organised by Rare Disease UK in Parliament. The theme for Rare Disease Day 2014 is ‘joining together for better care’ as experience shows that bringing together scattered knowledge and resources for people living with rare diseases is the most efficient and effective way to mobilise the care patients and families need and deserve.